Posts tagged “pediatric neurologist

Musing & New Home

I was sitting here thinking tonight about my boys, and the conversations we have had, and the decisions we have made along the way. One day I hope that my sons will say to me, Mom, you were a really great mom, and if I never accomplish anything else that alone will make my life complete.

Its been a busy 6 months in our lives, with highs and lows. Aidan had a tonic clonic seizure back in November, and had another one last week. Pretty scary, but at least this time I was more prepared for it. We are now waiting for him to see a pediatric neurologist and don’t really know what to expect. He has been forbidden by his doctor to play video games, and I extended that to computers and tv as well just as a precaution. Its really hard for a kid these days to forgo this without feeling like its a punishment, but thankfully he is also an avid reader and has spent the time rereading the Harry Potter series.

Rowan went in today to do an initial intake interview for a long term study on a special enzyme called “LUMINENZ-AT”. They took a stool sample and will be checking to see if his body is not producing enough of a certain enzyme that breaks down proteins to create amino acids that create neurotransmitters. Forgive me if I didnt get that exactly right, but the general idea is it could help him break down food better to improve the absorption of it and thereby increase brain functioning. If is deficient in the enzyme he will be admitted to the study, which could be upto 3 years long. They will do evaluations and testing, which I hope can give us more tools to help Rowan and understand him better. He was pretty unimpressed by the whole thing, but enjoyed the free M&Ms and finally was won over by giftcards to his favorite store … Target. He wanted to go straight there, but I convinced him tomorrow would be soon enough.

In other news we finally closed on our first home purchase and as ecstatic as I am, my feelings are still mixed. After the initial elation, comes the moving process, which is a bit ill timed considering I am taking summer classes, the boys are in their last week of school and John is working the whole time (as am I, but less so). So these next few weeks will be rough, but I hope things will settle back into a routine by mid July at the latest. Buying a house is thrilling, exciting and scary at the same time, because suddenly we have this big bill we didn’t have before, and this huge long term commitment. I know it was the right thing for us to do, and I am happy, but I still haven’t adjusted yet. We are so tempted to go out and buy all this stuff for the new house, but I’m trying to rein us in because we just plopped a big sum down and need to be caution with our spending until we acclimate to the new budget.

I don’t think the boys have really mentally transitioned to thinking of the new house as home yet, partially because we haven’t gotten the furniture over there yet. John still asks me the address. The first thing we did after we got keys was go swimming in the pool. Day 2 consisted of swimming and moving a few more things over, and day 3 mostly cleaning and no swimming (much to the kids disappointment). Upon leaving Rowan decided we were not getting a new house and became very upset saying “We’re not getting a new house”. I don’t think it will be real to him until we are all moved in and I can honestly say we will all rest easier when we are settled in.